Thursday, April 20, 2017

Warm flashes

Hot flashes have arrived! I was hoping to avoid them, since I have had no problem even though the menses have become irregular, and my sister had no problem. It may be possible that Tamoxifen speeds up the natural process of entering menopause.
They started mild, just like blushing, so it took two weeks to recognize for what they are. At first they were few and far in between, e.g once during the day, twice at night, but now they are visiting regularly, at least hourly, and during every kind of situation, including while talking with others. Sigh....    At this point they could be described as warm flashes.
It is said that they stop when hormonal therapy stops. FOUR YEARS of this???
What may help:
  • acupuncture (already doing it, it didn't prevent it)
  • diet without alcohol or spicy foods (already doing it)
  • relaxation (stressful situations/thoughts can bring this on, so be sure to have  regular meditation practice)
  • drugs (treat side effects of drugs with more drugs, possibly on the WADA list)

Update from the future: The warm flashes only lasted about 6-7 weeks. 😊

Sunday, April 16, 2017

What we say or how we react


"There is no single right approach and no simple answer to dealing with the human side of cancer." 
--JC Holland, The Human Side of Cancer

You will find out that you are not the only woman with breast cancer and that breast cancer patients come from all paths of lifestyles. Beware that incomplete information can result in erroneous ideas, and decisions may be made without backing of scientific evidence.

Upon hearing of a breast cancer diagnosis or treatment, people have to deal with their fears and uncertainties. That includes both sides, women who get the diagnosis, and people who come in contact with these women. We can switch between numerous coping mechanisms during a cancer journey.

Here are some coping mechanisms/attitudes of women with a cancer diagnosis:
Avoider/Procrastinator:  Me? It can't be that bad. I don't need to see a doctor/get treatment/...
Fighters:  I am going to beat this thing. I am going to start exercise/meditation/acupuncture/....  I choose to do the most aggressive treatment, chemo, mastectomy,  even if it is not needed scientifically.
Stoics/Non-fighters: Accept and endure what comes, but I don't go out of my way to seek new treatments.
Paranoid: May choose aggressive treatments so that the cancer won't come back.  I can (will) die from this even though the diagnosis was 15 years ago.

Here are some coping mechanisms by people who hear about your cancer journey:
Cheerleaders: You'll be fine. They caught it early. You don't look like you have cancer.
Therapists: This is because you have too much stress in your life (bad job, difficult relationships, ...). Think positively, so that you can beat the odds.
Fighters:  Who needs boobs, cut them off. Get over it and move on.
Problem Solvers: You can cure your cancer, if you take whatchamacallit, or become a vegan, or ...
Unsure what to say, but want to say something: The relative of a friend has cancer and has such and such an experience.
Clichés: Everything happens for a reason. Think positively.

Bad things happen:
"Everyone who is born holds dual citizenship, in the kingdom of the well and in the kingdom of the sick.[...] Sooner or later each of us is obliged, at least for a spell, to identify ourselves as citizens of that other place."
--Susan Sontag, Illness as Metaphor

What can we do?
Cancer patient: Separate fact from fiction and seek medical help, and otherwise stay with the attitude that comes natural.
Supporter of the cancer patient: Listen! Say you are here for them. Give some concrete suggestions how you can help.
P.S. Take this moment to familiarize yourself about choices such as mastectomy or reconstruction and what decisions you might be inclined to make. It might happen to you in the future.



Thursday, April 13, 2017

One year follow-up

Exactly 12 months ago was my bilateral mastectomy.

As a celebration I competed in a local weightlifting competition. This event was also my first competition a year ago. Despite the weight loss and although I hand't managed such weights in training I really wanted to repeat the weights lifted for the clean & jerk a year ago, 55kg - 58kg - 61kg.  It went fine until the clean of 61kg, which I caught badly. I was feeling disappointed that I had to drop it. But  then I thought "No way am I going to loose this bar!!!" And with sheer willpower and a little stumbling on the platform  I managed to save it. It is surprising how little time it takes to think all these thoughts and feel all these feelings and still act timely.

On the one hand I am much healthier now than I was then and feel awesome. The one year follow-up tests (blood lab values) were super good and better than before.  And I think about the cancer less and less, although it is a chronic disease.
On the other hand I have to take Tamoxifen for 4 more years. It has side effects. I take only half the dose to the dismay of the oncologist. Clearly tamoxifen has a good track record (it's been around for 30 years) of preventing recurrences. The unanswered question is how to balance the risk of recurrence with the risk of long term side effects increasing comorbidities for somebody with little or no risk factors like myself.